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TonagerieGut, dass ich diese Vase habe - vor allem dann, wenn mir mein Schatz Rosen schenkt 😍<a href="https://www.tonagerie.at" rel="nofollow noopener" translate="no" target="_blank">https://www.tonagerie.at</a><a href="https://mastodon.social/tags/keramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#keramik</a> <a href="https://mastodon.social/tags/unikate" class="mention hashtag" rel="nofollow noopener" target="_blank">#unikate</a> <a href="https://mastodon.social/tags/handmade" class="mention hashtag" rel="nofollow noopener" target="_blank">#handmade</a> <a href="https://mastodon.social/tags/t%C3%B6pfern" class="mention hashtag" rel="nofollow noopener" target="_blank">#töpfern</a> <a href="https://mastodon.social/tags/steinzeugkeramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#steinzeugkeramik</a> <a href="https://mastodon.social/tags/pottery" class="mention hashtag" rel="nofollow noopener" target="_blank">#pottery</a> <a href="https://mastodon.social/tags/vase" class="mention hashtag" rel="nofollow noopener" target="_blank">#vase</a> <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> <a href="https://mastodon.social/tags/clay" class="mention hashtag" rel="nofollow noopener" target="_blank">#clay</a> <a href="https://mastodon.social/tags/art" class="mention hashtag" rel="nofollow noopener" target="_blank">#art</a> <a href="https://mastodon.social/tags/homedecor" class="mention hashtag" rel="nofollow noopener" target="_blank">#homedecor</a> <a href="https://mastodon.social/tags/stoneware" class="mention hashtag" rel="nofollow noopener" target="_blank">#stoneware</a> <a href="https://mastodon.social/tags/ceramic" class="mention hashtag" rel="nofollow noopener" target="_blank">#ceramic</a> <a href="https://mastodon.social/tags/wheelthrown" class="mention hashtag" rel="nofollow noopener" target="_blank">#wheelthrown</a> <a href="https://mastodon.social/tags/design" class="mention hashtag" rel="nofollow noopener" target="_blank">#design</a> <a href="https://mastodon.social/tags/contemporaryceramics" class="mention hashtag" rel="nofollow noopener" target="_blank">#contemporaryceramics</a> <a href="https://mastodon.social/tags/interiordesign" class="mention hashtag" rel="nofollow noopener" target="_blank">#interiordesign</a> <a href="https://mastodon.social/tags/sculpture" class="mention hashtag" rel="nofollow noopener" target="_blank">#sculpture</a> <a href="https://mastodon.social/tags/gartenkeramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#gartenkeramik</a> <a href="https://mastodon.social/tags/keramiks%C3%A4ulen" class="mention hashtag" rel="nofollow noopener" target="_blank">#keramiksäulen</a> <a href="https://mastodon.social/tags/ArtShop" class="mention hashtag" rel="nofollow noopener" target="_blank">#ArtShop</a> <a href="https://mastodon.social/tags/fedigiftshop" class="mention hashtag" rel="nofollow noopener" target="_blank">#fedigiftshop</a>

Mx Kestrel ᓚᘏᗢNow when I over-exert myself and come home & collapse into bed exhausted, <a href="https://glammr.us/tags/visibleapp" class="mention hashtag" rel="nofollow noopener" target="_blank">#visibleapp</a> tells me exactly how much I’ve fucked up 😅 Anyway, looked @ 3 condos & scootered around Sam’s club for a short time & now I’m probably in bed for the rest of the night at 5pm. Used almost all my “pace points” in 1 3-hr block, eesh. <a href="https://glammr.us/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a>

Mx Kestrel ᓚᘏᗢSo, further usage brings me the knowledge that showering, even with my new shower chair, brings me almost entirely into the highest “exertion zone” for my heart rate. This is both annoying, and explains why I almost always need to lay down for at least 5 minutes after every shower. Tomorrow is a busy day, so we shall see what further insights are to be had! <a href="https://glammr.us/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> <a href="https://glammr.us/tags/VisibleApp" class="mention hashtag" rel="nofollow noopener" target="_blank">#VisibleApp</a>

Mx Kestrel ᓚᘏᗢ<a href="https://mastodon.social/@Heidiknits" class="u-url mention" rel="nofollow noopener" target="_blank">@Heidiknits</a> Yea I’m figuring it’s just part of the weird <a href="https://glammr.us/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> heart stuff. But it’s very validating to me to see it picking that up already. Every time I go to the dr & get vitals taken I’m always praised for how good they are, & it makes me feel like my own body is gaslighting me. Like, am I actually sick or was it just that one time & all the symptoms are in my head/me being lazy? So seeing it reflected for once is like “Ok I’m not crazy that’s good”

Heidi<a href="https://glammr.us/@KestrelSWard" class="u-url mention" rel="nofollow noopener" target="_blank">@KestrelSWard</a> There have been nights when I've earned zone minutes while sleeping. Like I'm exercising in my sleep but really it's just my body being a jerk. <a href="https://mastodon.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a>

Mx Kestrel ᓚᘏᗢSo, after laying down scrolling social media for two hours, I discovered how to go look at the recent history of my heart rate in the app and learned about tagging activities. Anyway, curious about the three random spikes of HR that happened during that time. The whole time I was just laying down without moving much more than my arms to reply to posts. I am definitely gonna share this data w/ my cardiologist once I have a good amount. <a href="https://glammr.us/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> <a href="https://glammr.us/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#disability</a>

Mx Kestrel ᓚᘏᗢI did not plan it this way, but I got my Visible armband today, on the 35th anniversary of the ADA. It feels like a good omen for how helpful this is gonna be. I’d already found the app results troubling just doing the bare daily check ins. But now after wearing the armband for 2 hours while mostly laying down I’m even more troubled. <a href="https://glammr.us/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> <a href="https://glammr.us/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#disability</a>

Christina KochGenau vor zwei Jahren waren mein Freund und ich im Wanderurlaub in Schottland. Drei Wochen sind wir durch schönste Landschaften gewandert, haben Berge erklommen und Täler durchschritten. Am Tag unserer Rückkehr wurde ich krank – und nie wieder gesund. Ich bin seit über einem Jahr 23h/Tag bettlägerig und kann die Wohnung nicht mehr verlassen. <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://mastodon.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://mastodon.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MCAS</a> <a href="https://mastodon.social/tags/CCI" class="mention hashtag" rel="nofollow noopener" target="_blank">#CCI</a>

AllesInBewegungJust a few hours left: <a href="https://mastodon.social/tags/Freedom" class="mention hashtag" rel="nofollow noopener" target="_blank">#Freedom</a> <a href="https://mastodon.social/tags/Flotilla" class="mention hashtag" rel="nofollow noopener" target="_blank">#Flotilla</a> <a href="https://mastodon.social/tags/Coalition" class="mention hashtag" rel="nofollow noopener" target="_blank">#Coalition</a> <a href="https://mastodon.social/tags/boat" class="mention hashtag" rel="nofollow noopener" target="_blank">#boat</a> <a href="https://mastodon.social/tags/Handala" class="mention hashtag" rel="nofollow noopener" target="_blank">#Handala</a> on his way to <a href="https://mastodon.social/tags/Gaza" class="mention hashtag" rel="nofollow noopener" target="_blank">#Gaza</a> with much needed <a href="https://mastodon.social/tags/aid" class="mention hashtag" rel="nofollow noopener" target="_blank">#aid</a> in the face of <a href="https://mastodon.social/tags/genocide" class="mention hashtag" rel="nofollow noopener" target="_blank">#genocide</a> . Crew announces <a href="https://mastodon.social/tags/hunger" class="mention hashtag" rel="nofollow noopener" target="_blank">#hunger</a> <a href="https://mastodon.social/tags/strike" class="mention hashtag" rel="nofollow noopener" target="_blank">#strike</a> in case of <a href="https://mastodon.social/tags/IDF" class="mention hashtag" rel="nofollow noopener" target="_blank">#IDF</a> <a href="https://mastodon.social/tags/kidnapping" class="mention hashtag" rel="nofollow noopener" target="_blank">#kidnapping</a> ! <a href="https://mastodon.social/tags/Break" class="mention hashtag" rel="nofollow noopener" target="_blank">#Break</a> the <a href="https://mastodon.social/tags/siege" class="mention hashtag" rel="nofollow noopener" target="_blank">#siege</a>, the <a href="https://mastodon.social/tags/illegal" class="mention hashtag" rel="nofollow noopener" target="_blank">#illegal</a> <a href="https://mastodon.social/tags/blockade" class="mention hashtag" rel="nofollow noopener" target="_blank">#blockade</a> must end!<a href="https://freedomflotilla.org/ff…" rel="nofollow noopener" translate="no" target="_blank">https://freedomflotilla.org/ff…</a> <a href="https://invidious.snopyta.org/…" rel="nofollow noopener" translate="no" target="_blank">https://invidious.snopyta.org/…</a>Track, boost, rally with <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> or pans whereever is fit, take <a href="https://mastodon.social/tags/responsibility" class="mention hashtag" rel="nofollow noopener" target="_blank">#responsibility</a> at work, ...!<a href="https://a.gup.pe/u/palestine" class="u-url mention" rel="nofollow noopener" target="_blank">@palestine@a.gup.pe</a> <a href="https://a.gup.pe/u/israel" class="u-url mention" rel="nofollow noopener" target="_blank">@israel@a.gup.pe</a> <a href="https://mastodon.social/@israel" class="u-url mention" rel="nofollow noopener" target="_blank">@israel</a> <a href="https://lemmy.ml/c/palestine" class="u-url mention" rel="nofollow noopener" target="_blank">@palestine@lemmy.ml</a>

Tom KindlonI’ve started bringing my seat-stick out with me more, as a way *to put up my feet*.I can feel self-conscious about putting my feet up on another chair.With my orthostatic intolerance as part of my ME, my body doesn’t like having my feet on the floor for long.<a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#longcovid</a> <a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener" target="_blank">@pots</a> <a href="https://disabled.social/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a>

TonagerieKleiner Teller für Kerzen, zur Schmuckablage, für Schlüssel ….<a href="https://www.tonagerie.at" rel="nofollow noopener" translate="no" target="_blank">https://www.tonagerie.at</a><a href="https://mastodon.social/tags/keramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#keramik</a> <a href="https://mastodon.social/tags/unikate" class="mention hashtag" rel="nofollow noopener" target="_blank">#unikate</a> <a href="https://mastodon.social/tags/handmade" class="mention hashtag" rel="nofollow noopener" target="_blank">#handmade</a> <a href="https://mastodon.social/tags/t%C3%B6pfern" class="mention hashtag" rel="nofollow noopener" target="_blank">#töpfern</a> <a href="https://mastodon.social/tags/steinzeugkeramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#steinzeugkeramik</a> <a href="https://mastodon.social/tags/pottery" class="mention hashtag" rel="nofollow noopener" target="_blank">#pottery</a> <a href="https://mastodon.social/tags/vase" class="mention hashtag" rel="nofollow noopener" target="_blank">#vase</a> <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> <a href="https://mastodon.social/tags/clay" class="mention hashtag" rel="nofollow noopener" target="_blank">#clay</a> <a href="https://mastodon.social/tags/art" class="mention hashtag" rel="nofollow noopener" target="_blank">#art</a> <a href="https://mastodon.social/tags/homedecor" class="mention hashtag" rel="nofollow noopener" target="_blank">#homedecor</a> <a href="https://mastodon.social/tags/stoneware" class="mention hashtag" rel="nofollow noopener" target="_blank">#stoneware</a> <a href="https://mastodon.social/tags/ceramic" class="mention hashtag" rel="nofollow noopener" target="_blank">#ceramic</a> <a href="https://mastodon.social/tags/wheelthrown" class="mention hashtag" rel="nofollow noopener" target="_blank">#wheelthrown</a> <a href="https://mastodon.social/tags/design" class="mention hashtag" rel="nofollow noopener" target="_blank">#design</a> <a href="https://mastodon.social/tags/contemporaryceramics" class="mention hashtag" rel="nofollow noopener" target="_blank">#contemporaryceramics</a> <a href="https://mastodon.social/tags/interiordesign" class="mention hashtag" rel="nofollow noopener" target="_blank">#interiordesign</a> <a href="https://mastodon.social/tags/tableware" class="mention hashtag" rel="nofollow noopener" target="_blank">#tableware</a> <a href="https://mastodon.social/tags/sculpture" class="mention hashtag" rel="nofollow noopener" target="_blank">#sculpture</a> <a href="https://mastodon.social/tags/gartenkeramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#gartenkeramik</a> <a href="https://mastodon.social/tags/keramiks%C3%A4ulen" class="mention hashtag" rel="nofollow noopener" target="_blank">#keramiksäulen</a> <a href="https://mastodon.social/tags/kunsthandwerk" class="mention hashtag" rel="nofollow noopener" target="_blank">#kunsthandwerk</a> <a href="https://mastodon.social/tags/craft" class="mention hashtag" rel="nofollow noopener" target="_blank">#craft</a> <a href="https://mastodon.social/tags/ArtShop" class="mention hashtag" rel="nofollow noopener" target="_blank">#ArtShop</a> <a href="https://mastodon.social/tags/fedigiftshop" class="mention hashtag" rel="nofollow noopener" target="_blank">#fedigiftshop</a>

Nyx MirBut, seriously. We do need this kind of art activism, and we need to evolve it in ways which make it accessible for our communities, including bedlife kin.If the idea of forming "a band of individuals united in anger and dedicated to exploiting the power of art to end the [Long Covid & Post-Acute Infection Syndromes] crisis" is exciting to you, hit me up illmarks @ nyx mir . com And, if you or anyone else is doing this work, yes please let me know! <a href="https://vis.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://vis.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://vis.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MCAS</a> <a href="https://vis.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a>

Tom KindlonFrom ME Research UK:As promised to a commenter last month, we have published an article clarifying the relationship between blood pressure and PoTS (a common ME/CFS comorbidity): bit.ly/potsandbp<a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://disabled.social/tags/OrthostaticIntolerance" class="mention hashtag" rel="nofollow noopener" target="_blank">#OrthostaticIntolerance</a> <a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener" target="_blank">@pots</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a>

Emily JohnsonOk I finally set up my <a href="https://bird.makeup/users/wearlumia" class="u-url mention" rel="nofollow noopener" target="_blank">@wearlumia</a> head blood flow track yesterday, have been logging data since last and using live mode todayI’m a convert, this is the real deal, every <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> and <a href="https://disabled.social/tags/OrthostaticHypotension" class="mention hashtag" rel="nofollow noopener" target="_blank">#OrthostaticHypotension</a> patient should have this, wow is this helpful!More on the science behind Lumia here and why POTS and Orthostatic Hypotension patients have messed up brain blood flow and resulting oxidative stress here: <a href="https://lumiahealth.com/pages/science" rel="nofollow noopener" translate="no" target="_blank">https://lumiahealth.com/pages/science</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesslife</a> <a href="https://mastodon.social/tags/fatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#fatigue</a> <a href="https://mastodon.social/tags/chronicfatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicfatigue</a> <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> <a href="https://mastodon.social/tags/potssyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#potssyndrome</a> <a href="https://mastodon.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> <a href="https://mastodon.social/tags/autonomic" class="mention hashtag" rel="nofollow noopener" target="_blank">#autonomic</a>

TonagerieUnd noch ein paar Dosen<a href="https://www.tonagerie.at" rel="nofollow noopener" translate="no" target="_blank">https://www.tonagerie.at</a><a href="https://mastodon.social/tags/keramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#keramik</a> <a href="https://mastodon.social/tags/unikate" class="mention hashtag" rel="nofollow noopener" target="_blank">#unikate</a> <a href="https://mastodon.social/tags/handmade" class="mention hashtag" rel="nofollow noopener" target="_blank">#handmade</a> <a href="https://mastodon.social/tags/t%C3%B6pfern" class="mention hashtag" rel="nofollow noopener" target="_blank">#töpfern</a> <a href="https://mastodon.social/tags/steinzeugkeramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#steinzeugkeramik</a> <a href="https://mastodon.social/tags/pottery" class="mention hashtag" rel="nofollow noopener" target="_blank">#pottery</a> <a href="https://mastodon.social/tags/vase" class="mention hashtag" rel="nofollow noopener" target="_blank">#vase</a> <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> <a href="https://mastodon.social/tags/clay" class="mention hashtag" rel="nofollow noopener" target="_blank">#clay</a> <a href="https://mastodon.social/tags/art" class="mention hashtag" rel="nofollow noopener" target="_blank">#art</a> <a href="https://mastodon.social/tags/homedecor" class="mention hashtag" rel="nofollow noopener" target="_blank">#homedecor</a> <a href="https://mastodon.social/tags/stoneware" class="mention hashtag" rel="nofollow noopener" target="_blank">#stoneware</a> <a href="https://mastodon.social/tags/ceramic" class="mention hashtag" rel="nofollow noopener" target="_blank">#ceramic</a> <a href="https://mastodon.social/tags/wheelthrown" class="mention hashtag" rel="nofollow noopener" target="_blank">#wheelthrown</a> <a href="https://mastodon.social/tags/design" class="mention hashtag" rel="nofollow noopener" target="_blank">#design</a> <a href="https://mastodon.social/tags/contemporaryceramics" class="mention hashtag" rel="nofollow noopener" target="_blank">#contemporaryceramics</a> <a href="https://mastodon.social/tags/interiordesign" class="mention hashtag" rel="nofollow noopener" target="_blank">#interiordesign</a> <a href="https://mastodon.social/tags/tableware" class="mention hashtag" rel="nofollow noopener" target="_blank">#tableware</a> <a href="https://mastodon.social/tags/sculpture" class="mention hashtag" rel="nofollow noopener" target="_blank">#sculpture</a> <a href="https://mastodon.social/tags/gartenkeramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#gartenkeramik</a> <a href="https://mastodon.social/tags/keramiks%C3%A4ulen" class="mention hashtag" rel="nofollow noopener" target="_blank">#keramiksäulen</a> <a href="https://mastodon.social/tags/kunsthandwerk" class="mention hashtag" rel="nofollow noopener" target="_blank">#kunsthandwerk</a> <a href="https://mastodon.social/tags/craft" class="mention hashtag" rel="nofollow noopener" target="_blank">#craft</a> <a href="https://mastodon.social/tags/ArtShop" class="mention hashtag" rel="nofollow noopener" target="_blank">#ArtShop</a> <a href="https://mastodon.social/tags/fedigiftshop" class="mention hashtag" rel="nofollow noopener" target="_blank">#fedigiftshop</a>

TonagerieDose mit Muster und zweifarbiger Glasur (wird bei gleichaltrigen Freunden gerne für Medikamentenblister verwendet — falls es nicht schon zu viele sind 🤨)<a href="https://www.tonagerie.at" rel="nofollow noopener" translate="no" target="_blank">https://www.tonagerie.at</a><a href="https://mastodon.social/tags/keramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#keramik</a> <a href="https://mastodon.social/tags/unikate" class="mention hashtag" rel="nofollow noopener" target="_blank">#unikate</a> <a href="https://mastodon.social/tags/handmade" class="mention hashtag" rel="nofollow noopener" target="_blank">#handmade</a> <a href="https://mastodon.social/tags/t%C3%B6pfern" class="mention hashtag" rel="nofollow noopener" target="_blank">#töpfern</a> <a href="https://mastodon.social/tags/steinzeugkeramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#steinzeugkeramik</a> <a href="https://mastodon.social/tags/pottery" class="mention hashtag" rel="nofollow noopener" target="_blank">#pottery</a> <a href="https://mastodon.social/tags/vase" class="mention hashtag" rel="nofollow noopener" target="_blank">#vase</a> <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> <a href="https://mastodon.social/tags/clay" class="mention hashtag" rel="nofollow noopener" target="_blank">#clay</a> <a href="https://mastodon.social/tags/art" class="mention hashtag" rel="nofollow noopener" target="_blank">#art</a> <a href="https://mastodon.social/tags/homedecor" class="mention hashtag" rel="nofollow noopener" target="_blank">#homedecor</a> <a href="https://mastodon.social/tags/stoneware" class="mention hashtag" rel="nofollow noopener" target="_blank">#stoneware</a> <a href="https://mastodon.social/tags/ceramic" class="mention hashtag" rel="nofollow noopener" target="_blank">#ceramic</a> <a href="https://mastodon.social/tags/wheelthrown" class="mention hashtag" rel="nofollow noopener" target="_blank">#wheelthrown</a> <a href="https://mastodon.social/tags/design" class="mention hashtag" rel="nofollow noopener" target="_blank">#design</a> <a href="https://mastodon.social/tags/contemporaryceramics" class="mention hashtag" rel="nofollow noopener" target="_blank">#contemporaryceramics</a> <a href="https://mastodon.social/tags/interiordesign" class="mention hashtag" rel="nofollow noopener" target="_blank">#interiordesign</a> <a href="https://mastodon.social/tags/tableware" class="mention hashtag" rel="nofollow noopener" target="_blank">#tableware</a> <a href="https://mastodon.social/tags/sculpture" class="mention hashtag" rel="nofollow noopener" target="_blank">#sculpture</a> <a href="https://mastodon.social/tags/gartenkeramik" class="mention hashtag" rel="nofollow noopener" target="_blank">#gartenkeramik</a> <a href="https://mastodon.social/tags/keramiks%C3%A4ulen" class="mention hashtag" rel="nofollow noopener" target="_blank">#keramiksäulen</a> <a href="https://mastodon.social/tags/kunsthandwerk" class="mention hashtag" rel="nofollow noopener" target="_blank">#kunsthandwerk</a> <a href="https://mastodon.social/tags/craft" class="mention hashtag" rel="nofollow noopener" target="_blank">#craft</a> <a href="https://mastodon.social/tags/ArtShop" class="mention hashtag" rel="nofollow noopener" target="_blank">#ArtShop</a> <a href="https://mastodon.social/tags/fedigiftshop" class="mention hashtag" rel="nofollow noopener" target="_blank">#fedigiftshop</a>

JB 🐎 :neuro:Hopeful question for the <a href="https://beige.party/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> community:In what ways can perimenopause (and menopause and beyond) impact pre-existing ME/CFS? I’m looking for any info at all: your personal experiences, links to helpful websites or forums, or scientific studies. I’m open to anything.ME-related websites seem to only have rather generic info about perimenopause/menopause. And I’ve only found scientific studies looking into how peri and gynae issues can mean someone is more likely to get ME/CFS for the first time at peri / meno age (which is not my question).It’s getting easier to look up perimenopause info, thank goodness, but I want to know how it could impact pre-existing ME/CFS. For example, I’m wondering if it could be responsible for triggering the significant decline in my baseline and the fact I very much have all the criteria of POTS now. However, these things could also be due to a previous burnout or over exertion in recent years, too, not peri. I’m wanting to build a picture of what’s possible to try to understand my current and future experiences and help guide my future decisions.<a href="https://beige.party/tags/pwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#pwME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://beige.party/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://beige.party/tags/myalgicencephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#myalgicencephalomyelitis</a> <a href="https://beige.party/tags/chronicfatiguesyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicfatiguesyndrome</a>

iBallesty🧵 ME/CFS & Long COVID: What Actually Helps 🚨 3,900+ patient reports ranked treatments by real-world impact. Here’s what worked 👇✅ Pacing (Top-rated) ✅ IV fluids/electrolytes ✅ IVIG & lymphatic drainage ✅ Low-dose Naltrexone, NK/LK ✅ Compression stockings, antihistamines ✅ ADHD meds (brain fog) ✅ Melatonin (sleep)❌ Graded Exercise Therapy (GET) – most harmful🎯 Tailored treatment by symptom cluster = 🔑 <a href="https://mastodon.ie/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCOVID</a> <a href="https://mastodon.ie/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://mastodon.ie/tags/PatientExperience" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientExperience</a> <a href="https://mastodon.ie/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#LDN</a> <a href="https://mastodon.ie/tags/IVIG" class="mention hashtag" rel="nofollow noopener" target="_blank">#IVIG</a> <a href="https://mastodon.ie/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a>

Janet Logan (she/her) 🏳️‍⚧️Living with Chronic Health Issues: My Journey <a href="https://janetannelogan.com/2025/07/19/living-with-chronic-health-issues-my-journey/" rel="nofollow noopener" translate="no" target="_blank">https://janetannelogan.com/2025/07/19/living-with-chronic-health-issues-my-journey/</a> <a href="https://mas.to/tags/Afib" class="mention hashtag" rel="nofollow noopener" target="_blank">#Afib</a>, <a href="https://mas.to/tags/Migraine" class="mention hashtag" rel="nofollow noopener" target="_blank">#Migraine</a>, <a href="https://mas.to/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a>, <a href="https://mas.to/tags/Spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#Spoonie</a>, <a href="https://mas.to/tags/Trans" class="mention hashtag" rel="nofollow noopener" target="_blank">#Trans</a>, <a href="https://mas.to/tags/Transgender" class="mention hashtag" rel="nofollow noopener" target="_blank">#Transgender</a><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener" target="_blank">@spoonies</a>

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