As many of you likely know, I’m immune compromised and chronically ill. If you’ve followed me on social media for a while you may not even recognize me anymore. I sure don’t recognize myself some days.
I got #Covid in May of 2022 and I have never recovered. I’m now an ambulatory wheelchair user and struggle daily. I can’t work. My quality of life is significantly compromised.
Many of us never recovered. We exist.
Please, wear a mask and stay home if you’re sick.
(cont)
My story with #Covid began with Pericarditis a week after infection. It was ‘mild’, I had both my vaccinations. I wore masks. I socially distanced but I still developed #POTS, #MEcfs and GI problems.
I got sick because I allowed a friend to come over to watch a hockey game. They didn’t tell me they felt unwell because they wanted so badly to see me. A mistake - and I’ve paid for it.
I don’t want this to happen to you or anyone you love. Please learn from my mistake.
@britt Thank you for sharing your experience, it really does help to raise awareness. I am so sorry this happened. I too struggle with chronic illness and am an avid masker/distancer due to high risks (although all face high risks!) I hope people will all take precautions and support each other and acknowledge the severities of long covid happening to so many. We need actions to prevent, support, and assist, and we need them to start today.
@britt Not fun and sorry to hear this
@britt I’m sorry your long Covid is so bad. I also got Covid for the first time in May 2022 and am still in the midst of long Covid. Mine is milder than yours, but it’s still life altering. The hardest part is now that the rest of the world has given up - still being vigilant is more isolating.
@britt Ugh, I'm so sorry to hear this, Britt. I had POTS already but since COVID, dysautonomia has become a daily thing. No worky. More struggle. We exist. <3
@kijekijikokwe <3 we exist. <3
Here if you ever need an understanding ear - I know how isolating it can all feel.
@britt I've had my heart attacks and mild brain damage and survived but it doesn't GET better.
The damage is done, there is no cure. I hope the corpos had fun making lots of money because they've kicked a hornet's nest the size of a planet this time.
@britt your story and others are why I still mask as much as possible despite societal pressures, for myself and others. It really hurts to hear these stories and know people are being ignored and swept under the rug. Thanks for being open and loud about it.
@ben <3 thank you for seeing us and doing your part to help keep people (and yourself) safe.
@britt I'm so very sorry for what's happened to you.
Thank you for sharing your story; hopefully, it will help someone make better choices.
@britt our health reporter just wrote a story about long COVID. https://laist.com/news/health/the-pandemic-emergencies-are-ending-where-does-that-leave-people-battling-long-covid
@tonymarcano thank you for this! And to your health reporter for highlighting our daily struggle.
@britt same here. It sucks
@britt
Sorry you're going through this.
@britt An d sadly forgotten by politicians
@britt I’m so sorry to hear this. I’m sending you all of the energy and light! I am also immune compromised and have had a hell of a year (I feel like I’m under house arrest). So I empathize both with your call to action and with dodging unmasked people.
@britt I’m so sorry for what COVID has put you through. I appreciate that you’re telling your story. People want covid to be over, but wishing doesn’t make it so. We all have to take responsibility for keeping others safe.
@britt I’m so sorry you are experiencing this. I too have #LongCovid & have had it since January 2022. It gave me myopericarditis (yes, that’s exactly what it sounds like) & left me with #POTS #brainfog & other symptoms. #Covid took nearly everything: my ability to work, my ability to walk across a room without my heart rate elevating over 200 bpm. I spent 9 months bed-bound. I’m gradually improving, but improvement is a relative term here. I can walk across the room now.